A young TikTok mum whose son has Pfeiffer syndrome keeps receiving mean comments from people who often ask her to stop sharing her baby’s photos online.
Natasha is a US-based mum of two; her eldest son, Julian, is 11, and her little baby Raedyn is 2 years old. Raedyn was born with Pfeiffer syndrome, a genetic disorder in which certain bones of the skull fuse and prevents the skull from growing normally.
This anomaly affects the shape of the head and causes increased pressure around the brain. Unfortunately, little baby Raedyn was born with this incredibly rare genetic disorder and has undergone over 20 surgeries in the last two years.
Natasha, who has been documenting and sharing Raedyn’s journey with craniosynostosis on her social media accounts, often receives negative comments from people online who beg her not to share his pictures on social media.
She has even been subjected to intense bullying online for how her son looks. But Natasha, who has over 871K followers on TikTok and 47.8K on Instagram, never shied away from sharing her children’s photos on her accounts, especially Raedyn’s – she shares every single detail about his condition and surgeries online to raise awareness among people.
“I will not stop… just because he looks different doesn’t mean that he is any less – he is perfect,” she said on TikTok.
Some of the cruel and mean comments she has received so far on her TikTok account read, “What quality of life will he have?” one asked.
“Why would you make him live like that? Such a miserable life that you’re permitting him to live,” said a second.
“Can you please stop sharing your baby’s photos online? No hard feelings, but you should because sometimes they scare me,” a third added.
According to Natasha, the rude and insensitive questions and comments didn’t only come from people on social media, sometimes when she is out with her family in public, some people don’t hesitate to come up to her and rudely ask, “What is wrong with your child?”, “Why does he look like that?” or “Don’t you get scared looking at him?”
The young mum says sometimes it gets very exhausting to explain her son’s condition to people over and over again and she fails to understand why some of the commenters don’t have any empathy in them.
“It’s exhausting to explain my son’s health problems over and over” she said. “He lives a life like every other child… does he look different? Absolutely – but that doesn’t make him any less,” the mum insisted.
“He deserves life, he deserves acceptance – I will fight until my dying day for that.”
Addressing people who don’t think twice before asking insensitive and rude questions, Natasha said,
“What people need to understand is that I am just a mum and my son is just a baby… our life doesn’t revolve around his diagnosis. My son looks a little bit different but that doesn’t mean he is just a lesson to give the world. It’s exhausting mentally and emotionally to go over the same diagnosis and explain my son’s health problems over and over to people.”
She continued, “We are just a normal family. I pray for the world to accept disabled people one day and not judge off of their appearance and the things they cannot do.”
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