A young TikTok mum whose son has Pfeiffer syndrome keeps receiving mean comments from people who often ask her to stop sharing her baby’s photos online.
Natasha is a US-based mum of two; her eldest son, Julian, is 11, and her little baby Raedyn is 2 years old. Raedyn was born with Pfeiffer syndrome, a genetic disorder in which certain bones of the skull fuse and prevents the skull from growing normally.
This anomaly affects the shape of the head and causes increased pressure around the brain. Unfortunately, little baby Raedyn was born with this incredibly rare genetic disorder and has undergone over 20 surgeries in the last two years.
Natasha, who has been documenting and sharing Raedyn’s journey with craniosynostosis on her social media accounts, often receives negative comments from people online who beg her not to share his pictures on social media.
She has even been subjected to intense bullying online for how her son looks. But Natasha, who has over 871K followers on TikTok and 47.8K on Instagram, never shied away from sharing her children’s photos on her accounts, especially Raedyn’s – she shares every single detail about his condition and surgeries online to raise awareness among people.
“I will not stop… just because he looks different doesn’t mean that he is any less – he is perfect,” she said on TikTok.
Some of the cruel and mean comments she has received so far on her TikTok account read, “What quality of life will he have?” one asked.
“Why would you make him live like that? Such a miserable life that you’re permitting him to live,” said a second.
“Can you please stop sharing your baby’s photos online? No hard feelings, but you should because sometimes they scare me,” a third added.
According to Natasha, the rude and insensitive questions and comments didn’t only come from people on social media, sometimes when she is out with her family in public, some people don’t hesitate to come up to her and rudely ask, “What is wrong with your child?”, “Why does he look like that?” or “Don’t you get scared looking at him?”
The young mum says sometimes it gets very exhausting to explain her son’s condition to people over and over again and she fails to understand why some of the commenters don’t have any empathy in them.
“It’s exhausting to explain my son’s health problems over and over” she said. “He lives a life like every other child… does he look different? Absolutely – but that doesn’t make him any less,” the mum insisted.
“He deserves life, he deserves acceptance – I will fight until my dying day for that.”
Addressing people who don’t think twice before asking insensitive and rude questions, Natasha said,
“What people need to understand is that I am just a mum and my son is just a baby… our life doesn’t revolve around his diagnosis. My son looks a little bit different but that doesn’t mean he is just a lesson to give the world. It’s exhausting mentally and emotionally to go over the same diagnosis and explain my son’s health problems over and over to people.”
She continued, “We are just a normal family. I pray for the world to accept disabled people one day and not judge off of their appearance and the things they cannot do.”
Let us know your thoughts in the comments.
Source: news.com.au
I applaud this momma. How in the world can people be so insensitive?!? Everyone knows that some kids are born different than others. That’s just life. You keep doing what you’re doing momma. Screw those people that have no heart!! You’re strong and he’s blessed to have you as his mother. I pray that the surgeries are successful and his quality of life will be just what it’s supposed to be!! Keep up the good work lady!!
I know Netasha and Raedyn and Julian personally and the comments make me sick to my stomach telling her to kill him and other awful things. I speak to her regularly about amazing of a mother she is and how god gave Raedyn the perfect mom for this job!!!! She is amazing and I wish cruel internet haters would just scroll on and leave this beautiful family alone!
This beautiful momma and boys are my sister and nephews!!! They all are absolutely amazing! God sent raedyn here to us just the way he wanted to! The hateful comments are absolutely disgusting! People need to realize that just because a person looks a little different doesn’t mean they shouldn’t have the right to live in this world!!! Be better people and educate yourself!!!! Let’s be nice and love each other more!
You and you beautiful 😍 sweet boy are so genuine and kind people I’m so glad 🙂 you are my good friends 🙂
Hi 👋 my name is Amber Jade,
I’m 29 years old I was born with Pfeiffer Syndrome and just recently be diagnosed with Hip Dysplasia and Back L4/L5 which is the Fusion of the Spine like my elbows are too. I can’t straighten them like normal people can:( this makes my hips and back very sore 🙁 I also have had a hysterectomy cause I was diagnosed With chronic tummy pains at the age of 12 🙁 called endometriosis Which that sucked big time this lead to me getting PDA which means Pathological Demand Avoidance which narrows it down to the Autism Spectrum so unfortunately it’s hard to make friends as well as me looking different which doesn’t make it easy for kids to come up to me and say hello:( but that’s okay kids don’t understand probably because there parents haven’t taught them why I look different then everyone else. That’s cause I’m SPECIAL and I love it:) I live in WA north of Perth in Australia it’s a very beautiful place so clean and safe sometimes anyway haha 🙂 I’ve had about 200 surgeries I’m guessing.